Links
ORGANIZATIONS
National Sleep Foundation
Information on Sleep and Sleep Disorders:
www.sleepfoundation.org
Sign up for NSF Newsletter:
http://www.sleepfoundation.org/alert.html
American Academy of Sleep Medicine
Listing by state of accredited member Sleep Centers (Contact AASM for list of non-member accredited sleep centers):
www.aasmnet.org
American Board of Sleep Medicine
Listing by state of doctors certified in sleep medicine:
http://www.absm.org/Diplomates/listing.htm NORD (National Organization for Rare Disorders)
Information, medication assistance:
www.rarediseases.org
SLEEP CENTERS
Stanford Center for Narcolepsy
Comprehensive information, research, publications, cataplexy video, and medications:
http://www-med.stanford.edu/school/Psychiatry/narcolepsy/
The Sleep Site
Information, support:
www.thesleepsite.com
Center for Narcolepsy Research
Information, support, research opportunities:
http://www.uic.edu/depts/cnr
OTHER SLEEP SITES
SleepNet
Information, newsletters, forums, links:
http://www.sleepnet.com/
Sleep Medicine Home Page
Comprehensive List of Links to Sleep-related sites:
http://www.cloud9.net/~thorpy
Talkaboutsleep.com
Information, news, chats, message boards, disability:
www.talkaboutsleep.com
Eye On Sleep
The web’s premier sleep-related eZine:
http://info-wrks.com/eyeonsleep/
RESEARCH
Sleep Research Online
Sleep Research Articles:
http://www.sro.org/
Naps e-mail Alerts
Topical listing of current research in sleep medicine:
http://www.websciences.org/bibliosleep/naps/
Medscape
Research database:
www.medscape.com
Bibliosleep
Sleep Research Articles:
http://www.websciences.org/bibliosleep
The Sleep Well
Information and links:
http://www.stanford.edu/~dement/
Findarticles.com
Locate articles on narcolepsy:
http://www.findarticles.com
Center for Sleep Research - Siegel Lab
Extensive list of published research on narcolepsy and sleep:
http://www.bol.ucla.edu/~jsiegel/
MEDICATIONS & TREATMENT
Practice Parameters in the Treatment of Narcolepsy (2001)
Article from the AASM’s Journal SLEEP on medications used to treat narcolepsy:
http://www.guideline.gov/summary/summary.aspx?ss=6&nbr=2159&doc_id=293
Stanford Center for Narcolepsy
Most up-to-date list of medications prescribed in the treatment of narcolepsy. Click on “Medications” tab at:
http://www-med.stanford.edu/school/Psychiatry/narcolepsy/
RxList.com
Full prescribing Information on medications:
www.rxlist.com
Needy Meds
For those in need of financial assistance with prescriptions meds:
www.needymeds.com
PATIENT STORIES
People with Narcolepsy in the News
PATIENT WEBSITES
Narcolepsy - A Sleep Disorder
Melody’s Website: http://www.cataplexic.com
Narcolepsy Information
Kristina’s Website: home.insightbb.com/~narcolepsy_indiana/
OTHER SLEEP DISORDERS
American Sleep Apnea Association
Information and Support for Patients with Sleep Apnea
www.sleepapnea.org
Restless Legs Foundation
Information and Support for Patients with Restless Legs and/or Periodic
Limb Movement Disorder
www.rls.org
DISABILITY RESOURCES
Social Security Disability Programs
SSDI and SSI
www.ssa.gov
Job Accommodation Network
http://janweb.icdi.wvu.edu/
ADA Homepage
Americans with Disabilities Act
http://www.usdoj.gov/crt/ada/adahom1.htm
Education
Laws protecting against discrimination
http://www.ed.gov/offices/OCR/index.html
Education - IDEA
IDEA resources
http://www.ideapractices.org/about/fape.php
Employment
Laws protecting against discrimination
http://www.eeoc.gov/
Housing
Laws protecting against discrimination
http://www.hud.gov/offices/fheo/FHLaws/index.cfm
Short Course on Disability
User-friendly guide to disability rules and pitfalls to avoid
http://www.talkaboutsleep.com/sleepbasics/medicare_disabilitycourse.htm
Social Security Disability Secrets
Tips from a former disability examiner
http://www.disabilitysecrets.com
DRIVING
Licensing Provisions
Motor Vehicle Laws by State
http://www.law.cornell.edu/topics/state_statutes3.html#motor_vehicles
