About
Mission
To build a worldwide community for People With Narcolepsy.
Vision
To be the premiere online support resource for People With Narcolepsy and related conditions.
Philosophy
Bite Size Life believes technology can improve the quality of life for PWNs. As the premiere destination for PWNs around the world, we promise to stay informed of the latest technology and to share it with the community.
Why “Bite Size Life”?
Because Narcolepsy interrupts the otherwise normal routine of people who have the condition, a PWN’s life is prone to being experienced in bite-size morsels. As a community, it is believed and shared that Narcolepsy and Narcolepsy with Cataplexy is a condition, and not a name tag that defines us.
Saraiah Says:
Hi again Stu,
I was just perusing the “Philosophy” of Bite Size Life, and yeah!! Technology! I just showed the Livescribe Pulse SmartPen to two narcoleptic highschool and college students, and they about went cataplectic with excitement. And the Sonic Boom Bedshaker alarm clock is the ONE AND ONLY alarm clock that can wake me up (well, at least it wakes me up most of the time. Once it didn’t, and my poor 16 year old daughter was terrified, thinking I had died in my sleep.) So anyway, I hope there’s a way to get the word out that those two particular pieces of technology exist. They’re wildly helpful to me, and though I have researched and researched, I have found nothing else like either one of them.
Warmly,
Saraiah Naps
Posted on October 31st, 2009 at 11:21 pm
carbonspacemonkey1 Says:
Saraiah,
where can i get this alarm clock?
i need it bad, like real bad, like my biggest problem is sleeping in and it takes me forever to wake up in the morning enough to take my provigil
Posted on February 18th, 2010 at 12:37 am